Additional information and resources for when you face an adverse pregnancy diagnosis
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Journey of a Lifetime, by Tammy Tate, R.N.
A guidebook for parents who have received a terminal prenatal diagnosis. From creating birth plans to ideas for special keepsakes, this guide is a valuable resource to help parents make meaningful plans to celebrate and honor their baby’s lifetime. The author founded Carolina Perinatal Support, which provides a bridge of support for families experiencing an adverse prenatal diagnosis that will likely result in a preborn or newborn death. Through practical guidance, education, and compassionate support, they seek to relieve emotional suffering while preserving the dignity and integrity of the family as they make meaningful plans to honor the life of their baby. www.carolinaperinatal.com
String of Pearls
This organization offers practical guidance and compassion to families who find themselves on the darkest road they have ever walked. Founder Laura Huene, BSN, RN, has walked this road herself and now walks alongside other families as they make plans to honor their baby’s precious life, saying hello and goodbye all in one breath. www.stringofpearlsonline.org
A grief recovery support group where you can find help and healing for the hurt of losing a loved one. Visit www.griefshare.org
A helpful website for families and health care professionals that offers a list of hospitals and perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.
Now I Lay Me Down to Sleep
At a family's request, a NILMDTS Affiliated Photographer will come to your hospital or hospice location and conduct a sensitive and private portrait session. The portraits are presented to the families on an archival DVD or CD that can be used to print portraits of your cherished baby. This network of more than 7,000 photographers in the United States and 25 countries graciously volunteers their time and offers their services at no cost. For more information, visit http://www.nowilaymedowntosleep.org/. Photos in this booklet are used with the gracious permission of families whose photos were taken by photographers volunteering their time and expertise through NILMDTS.
More comfort care and helpful resources for an adverse pregnancy diagnosis.