Christians get high marks when it comes to ministering in crises. But when it comes to meeting the long-term needs of the chronically ill, many fail to get a passing grade. Sure, their intentions are good, but information, tools and resources keep them from doing a job well done.
Ministering to the chronically ill effectively means walking a mile in their shoes. Ask: How can we understand those people who have to manage their pain on a day-to-day basis, and how we, as the body of Christ, meet their needs?
Voices of chronic illnesses
Elizabeth Burchfield lives with multiple chronic conditions. Myofascial pain disorder and arthritis force her make a lot of concessions in her life.
"You get lonely," she says. "You want so much to see someone else but don't have the energy to even go to church."
Rennie Ellen Auiler, a cancer survivor who lives with ulcerative colitis and other chronic illnesses, describes the fatigue that comes with chronic illness as completely debilitating.
"Not the tiredness that healthy people experience after a long day," she says, "but the mind-numbing, crawl-into-a-hole-and die kind of fatigue that never goes away."
Judy Gann, who lives with fibromyalgia and other autoimmune system disorders, describes her life as a roller coaster.
"I may feel reasonably well one day and be flat in bed the next," she says.
Symptoms like these make it difficult for the chronically ill to participate in activities others may take for granted. Attending church service, sitting through a Bible study, walking around a shopping mall and driving to a retreat can all seem daunting to someone living with a chronic illness.
We need to step outside the four walls of the church and into the homes and communities of those in pain to meet the needs of the chronically ill most effectively. We need to enter their world. It's what Jesus would do.
Learning to minister
Rev. Liz Danielsen, Chaplain, and Founder of Spiritual Care Support Ministries, says the best gift we can give to the chronically ill is time.
"Simply saying, 'I would just like to be with you.' Jesus did that," she says. "I think we need to talk less and be present more."
When we do say something, it is critical we say something that helps, not hurts, the chronically ill. Experts offer these suggestions:
- I'm sorry you're hurting. Know that I'm here for you.
- Tell me about your condition. I want to understand how I can help.
- If you'd rather not talk about it, I understand
- I admire your courage and strength in handling your illness. You're an inspiration and encouragement to me.
- "I understand." People experience pain differently. Even if you have the same condition, your experience is different from someone else's.
- "But you look so good!" This implies if you were really sick, it would show.
- "It could be worse." This invalidates the chronically ill's experience of pain.
- "God's grace is sufficient." Although true, it comes across as insensitive and can leave the chronically ill feeling invalidated.
Keep in mind:
- Chronic conditions and illnesses are unpredictable. The chronically ill may feel fine one day but be in bed the next. Allow for last-minute cancellations and change of plans.
- Depression and suicide are more common for the chronically ill than the general population. Watch for depression and seek help if needed.
- The divorce rate is high for the chronically ill. Support the marriage as well as the individual with the chronic condition.
- Life's challenges are far from simple and require more than pat answers and pithy platitudes. When in doubt, don't.
Tips for Churches
Lisa Copen, founder of Rest Ministries, Inc.
- Send a complimentary CD of Sunday's sermon
- Provide resources and information on chronic illness ministries and support groups
- Post the bulletin and prayer requests on the church Web site, so those with chronic illness can feel "part of" the congregation
- Invite someone with chronic illness to share their testimony at church
- Start a Hopekeepers
®support group in your church. Learn more at www.restministries.org*.
The needs of those who chronically suffer are unique. It takes effort and commitment to minister effectively. Because suffering is such an individual experience a good rule of thumb is to talk less and listen more.
"It's sometimes best to put the books aside and just let them teach you," says Liz Danielsen.
The truth is the chronically ill have a lot to offer. Their experiences give them insight and sensitivity that others may lack. When you meet someone with a chronic condition or illness, why not ask yourself, "What can I learn from this person's life?"
You might be surprised.